My mother is the same person I always knew. She is not a different person. Her brain is sick. She is still ticking and she is capable of enjoying most of the things she was doing before Alzheimer's disease....
By Bob DeMarco
Alzheimer's Front Row
For us, communication and socialization go hand in hand. I am not using the clinical definition of socialization here. Instead, I am describing a continuing process that leads to the establishment of norms of behavior and communication in the Alzheimer's disease environment.
I think most Alzheimer's caregivers understand that the Alzheimer's patient can benefit from being in social settings and engaging in communication. Sadly, the exact opposite sometimes occurs as the patient and caregiver fall into the black hole of Alzheimer's disease.
Read Alzheimer's Disease Tip Communication and Socialization
Knowing that the day is coming when your loved one -- won't know you-- is the most horrific feeling of them all for an Alzheimer's caregiver. AFR is an Alzheimer's Reading Room companion website.
Showing posts with label socialization. Show all posts
Showing posts with label socialization. Show all posts
Friday, May 20, 2011
Sunday, May 30, 2010
Alzheimer's Caregiver Lament -- I can't take her out because she eats with her hands
By Bob DeMarco
Alzheimer's Front Row
Alzheimer's Front Row
The positive effects of socialization, initiative, and motivation on the part of Alzheimer's sufferers and their caregiver should not be overlooked. I believe these are as important as the medication......My name is Bob DeMarco, I am an Alzheimer's caregiver. My mother Dorothy, now 93 years old, suffers from Alzheimer's disease. We live our life one day at a time.
Saturday, August 22, 2009
Is Alzheimer's Everywhere?
My name is Bob DeMarco, I am an Alzheimer's caregiver. My mother Dorothy, now 93 years old, suffers from Alzheimer's.
Is Alzheimer's everywhere?
I don't get out much these days. But, I make an effort to take my mother out every Friday night. We always go to a place where we can easily interact with people. This is part of the effort to keep my mother socialized and in the "world".
Last night, we went to Vic and Angelo's in downtown Delray Beach, Florida. A really fantastic venue. If you click on the image to the left, you'll hear a nice rendition of a song you might recognize.
Usually I stand and my mother sits. Since I always have a smile on my face, people find it easy to approach and talk with me.
Last night, I had a conversation with a woman and a man that were waiting to go inside (we were eating on the outside). Sure enough, the woman told me about her mother who was diagnosed with Alzheimer's at 58. She was a little surprised to see me, and my 93 year old out and about.
Now to my point. We went to Vic and Angelo's three out of the last four Friday's. And, every time I met someone that was related to a sufferer of Alzheimer's.
Alzheimer's seems to be everywhere.
100 Million Adults Touched by Alzheimer's
Examining the Impact of Alzheimer's Disease in America
More than half of Americans report that they have been touched by someone (living or deceased) who has Alzheimer's disease, and roughly a third of Americans are worried about getting Alzheimer's. The majority of Americans have a poor understanding of the fatal and progressive brain disease and the extent of its impact on individuals and society.
These are among the key findings of the HBO ALZHEIMER'S PROJECT/HARRIS INTERACTIVE CENSUS, a new survey that reveals the impact of Alzheimer's, what Americans think about the disease, and how it has affected them, their relatives and friends.
The survey found that:
Original content the Alzheimer's Reading Room
More from the Alzheimer's Reading Room
Is Alzheimer's everywhere?
I don't get out much these days. But, I make an effort to take my mother out every Friday night. We always go to a place where we can easily interact with people. This is part of the effort to keep my mother socialized and in the "world".
Usually I stand and my mother sits. Since I always have a smile on my face, people find it easy to approach and talk with me.
Last night, I had a conversation with a woman and a man that were waiting to go inside (we were eating on the outside). Sure enough, the woman told me about her mother who was diagnosed with Alzheimer's at 58. She was a little surprised to see me, and my 93 year old out and about.
Now to my point. We went to Vic and Angelo's three out of the last four Friday's. And, every time I met someone that was related to a sufferer of Alzheimer's.
Alzheimer's seems to be everywhere.
Advice and Insight into Alzheimer's diseaseSubscribe to The Alzheimer's Reading Room
100 Million Adults Touched by Alzheimer's
Examining the Impact of Alzheimer's Disease in America
More than half of Americans report that they have been touched by someone (living or deceased) who has Alzheimer's disease, and roughly a third of Americans are worried about getting Alzheimer's. The majority of Americans have a poor understanding of the fatal and progressive brain disease and the extent of its impact on individuals and society.
These are among the key findings of the HBO ALZHEIMER'S PROJECT/HARRIS INTERACTIVE CENSUS, a new survey that reveals the impact of Alzheimer's, what Americans think about the disease, and how it has affected them, their relatives and friends.
The survey found that:
- 54% of the U.S. population, or more than 100 million people, has been touched in some way by Alzheimer's.
- More than half (52%) of those surveyed reported knowing someone living with the disease or someone who had it, but is now deceased.
Original content the Alzheimer's Reading Room
More from the Alzheimer's Reading Room
- The Alzheimer's Reading Room--Press Release
- Test Your Memory (TYM) for Alzheimer's or Dementia in Five Minutes
- Questions About Test Your Memory (TYM) for Alzheimers and Dementia
- Dimebon Clinical Trial?
- The Thyroid and Alzheimer's
- Are Alzheimer's Caregivers the Forgotten?
- Is it Really Alzheimer's or Something Else?
- Wii a Useful Tool for Alzheimer's Caregivers
- Five Ways to Keep Alzheimer's Away
- 2009 Alzheimer's Disease Facts and Figures
- The Mini-Cog Test for Alzheimer's and Dementia
- What is Dementia?
- A Real Solution to the Health Care Crisis
- 80 Percent of Medical Bills Contain Errors -- Fighting Mistakes
Bob DeMarco is an Alzheimer's caregiver and editor of the Alzheimer's Reading Room. The Alzheimer's Reading Room is the number one website on the Internet for advice and insight into Alzheimer's disease. Bob taught at the University of Georgia, was an executive at Bear Stearns, the CEO of IP Group, and is a mentor. He has written more than 700 articles with more than 18,000 links on the Internet. Bob resides in Delray Beach, FL.
Tuesday, July 21, 2009
Walmart and this Alzheimer's Caregiver
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My name is Bob DeMarco, I am an Alzheimer's caregiver. My mother Dorothy, now 93 years old, suffers from Alzheimer's disease.I learned in my role as an Alzheimer's caregiver that exercise, bright light, socialization, and simple tasks that allow my mother to use her brain have a positive effect on my mother's quality of life and behavior.
I am always searching for new ways to keep her active and in the world.
About a year ago, I came up with a new idea and decided to give it a try.
I took my mother to Super Walmart for an outing. If you have a super Walmart near you, you already know the parking lot is usually jammed.
When we arrive at Walmart, I look around for a parking space. We do not use the handicapped spot. Reason? Exercise (mission accomplished).
We park, and I walk my mother up to the entrance to the store. Next, I get her into one of those electric shopping carts that allow you to drive around the store. This forces my mother to use her brain (mission accomplished).
When I take her into Walmart we drive around through all the departments. This allows my mother to use her brain for an extended period of time, and to be exposed to the bright lighting (mission accomplished).
My mother usually gets nervous when she is around large groups of people. The experience in Walmart exposes her to lots of people, and sometimes when she is stopped people actually say 'hi' or start talking to her (mission accomplished).
The trip to Walmart satisfies a need to keep her in and attached to the outside world. (mission accomplished).
If I let my mother sit around (actually lay around at home), she often falls into a dark mood. Sometimes she will just stop talking, or worse utter words like " I would be better off dead", or, "I am living on overtime".
I noticed years ago, when I take her out into the world her behavior improves, she starts smiling, and often starts interacting with others (this really makes me feel good--mission accomplished).
To be honest, we both benefit from the trip to Walmart.
For me? I get out in the world and stay attached to other human beings. This beats staying at home day after day--all alone.
The trip to Walmart is like a respite to me. Even though I am a man, I can now tell you the price of everything we buy. I can tell you we save lots of bucks while shopping in Walmart--another benefit.
We now go to super Walmart weekly.
My advice to you? Get out in the real world and smell the Cheez-it(s).
From the Alzheimer's Reading Room
Bob DeMarco is an Alzheimer's caregiver and editor of the Alzheimer's Reading Room. The Alzheimer's Reading Room is the number one website on the Internet for advice and insight into Alzheimer's disease. Bob taught at the University of Georgia, was an executive at Bear Stearns, the CEO of IP Group, and is a mentor. He has written more than 700 articles with more than 18,000 links on the Internet. Bob resides in Delray Beach, FL.
From the Alzheimer's Reading Room
- The Alzheimer's Reading Room--Press Release
- Test Your Memory (TYM) for Alzheimer's or Dementia in Five Minutes
- Questions About Test Your Memory (TYM) for Alzheimers and Dementia
- Medivation Dimebon Connection Study Complete, Additional Phase 3 Trials Still Open
- The Thyroid and Alzheimer's
- Are Alzheimer's Caregivers the Forgotten?
- Flavanol-rich Cocoa Consumption Improves Blood Flow to the Brain
- A Simple Three Minute Test Can Detect the Earliest Stage of Alzheimer's Disease
- Eli Lilly Launches Two Late Stage Clinical Trials for Alzheimer's (LY2062430)
- Is it Really Alzheimer's or Something Else?
- Wii a Useful Tool for Alzheimer's Caregivers
- Five Ways to Keep Alzheimer's Away
- 2009 Alzheimer's Disease Facts and Figures
- The Mini-Cog Test for Alzheimer's and Dementia
- What is Dementia?
- A Real Solution to the Health Care Crisis
- 80 Percent of Medical Bills Contain Errors -- Fighting Mistakes
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